Here we are on the eve of April Fool's Day! I admit, it's not really a holiday I gave much thought to before. However, 2009 changed my view of it forever.
A couple of days before April Fool's Day, Shane had not been feeling very well. He got really pale and clammy while putting together some bookcases. He was sort of breath and said he just didn't feel "right." He went to lay down and just didn't look good at all. The next day we went to the doctor and he didn't do much but say he thought that the leg pain Shane was complaining about was nothing much but a pulled muscle. We go home and follow the doctor's directions only to have Shane wake up the next morning (April 1st) to a swollen and streaked leg. Off to the doctor we go again...this time he sends us for an ultrasound, still swearing that he doesn't think it's anything serious.
So we go for the ultrasound, to make a long story short, he had blood clots in his left leg. We were sent immediately to the ER where they started running a lot of tests. The doctor came in to tell us that Shane's lungs were peppered with blood clots. He actually said it looked like someone had put their fingers in red paint and flicked the paint at Shane's lungs...
His awful feelings the days prior were because he survived a pulmonary embolism. The doctor emphasized "survived" because in his words, not many people do. That left us eight days of a blur in the hospital while the doctors tried to figure out why Shane had blood clots. He had none of the typical triggers for blood clots, he didn't have a recent surgery, doesn't fly in planes a lot, doesn't sit for long periods of time. After several days they finally did genetic testing and found that he has Lupus Anti-coagulant.
(for more information, take your pick!)
What are the major symptoms of LA (besides the obvious blood clots)? Well, they are 1. early hair loss
2. difficulty losing weight
^sounds like someone I know and love! In addition to those symptoms, Shane had been having horrendous night sweats for over a week prior to the pulmonary embolism. Night sweats are a huge red flag for a few major health issues, please do not ever ignore those!
The good news is this, Shane has a pretty normal life with his medication. He has a few food items he has to avoid but other than that I think he has good control on his LA. The downside is that it is hereditary. The kids will eventually be tested as they get a little older.
I am always thankful to have Shane in my life but watching him survive all that and see our life together flash before me...made me all the more thankful!
The point of my ramble? To get the word out there on LA. Shane had worked so hard for so long on his weight, been to sleep centers for his insomnia and just accepted that he had thinning hair. Each of those symptoms seperately may not seem like anything earth shattering but I sure wish that one of those doctors had listened to the fact that he had suffered with it all for so long and perhaps dug a little deeper before we had to give him the title of "survivor."
Flick & Leah
4 years ago